In my last blog I focused on advocacy and awareness on a broader level; in this session I would like to talk more about the individual sharing of experience and how it can affect others. I am amazed by the strength and courage of Mesothelioma victims and families. They are fighting a rare disease, often with limited information and resources. I have found that a primary support resource can simply be others who are experiencing the same or a similar diagnosis. Some clients who wonder how they can help on an individual level are often surprised how valuable simply sharing their own experience can be to others. I would like to remind those of you struggling with Mesothelioma and other asbestos-related diseases how strong and influential your voice can be.

Sharing your personal diagnosis and treatment experiences often helps other patients. It can also assist providers and researchers. Your story can be shared in a variety of ways: person-to-person, during meetings with providers, in a local or online support group, or in an online community (such as the one here at the MesoRC).

Your story and experience can help others by:

  • Letting others know what they can expect from the diagnosis and/or treatments.

  • Establishing an understanding of treatment options and their potential effectiveness with this rare disease.

  • Giving others ideas about how to manage the symptoms of Mesothelioma.

  • Providing techniques and ideas for getting through various treatment options.

  • Spreading information regarding resources available and where and how to utilize them.

  • Allowing clinicians and researchers to learn from those with first hand knowledge of Mesothelioma and asbestos-related illnesses.

  • Offering hope and empathy to others who are living through similar challenges.

Each of us has a unique experience that can provide knowledge and support to others. You can help others survive their disease and cope with everything it entails along the way. Please remember how valuable your story is and how much you can help others by sharing it.