Hope: survival after mesothelioma
"Dying was not an option," says Heather Von St. James of Minnesota, who has defied the odds and conquered mesothelioma.
She was diagnosed with the disease nearly three years ago now; Heather believes she was exposed as a child to the asbestos in her father's work clothes. Now, two and a half years after undergoing radical treatment, Heather remains disease-free.
Heather had been experiencing health problems and shortness of breath, but had chalked it up to her first-time pregnancy. When she couldn't ignore the weight in her chest any longer, she consulted her doctors. Three months after giving birth to her daughter Lily, doctors in Minnesota found a lump in Heather's lung the size of an orange. She was given three options: do nothing and live maybe 15 months, try chemotherapy and radiation and live an expected 5 years, or go see Dr. Sugarbaker in Boston.
Heather's husband made the decision immediately, and the family moved to Boston to begin treatment with the head of the International Mesothelioma Program at Brigham & Women's Hospital in Boston. Dr. Sugarbaker performed surgery to remove Heather's left lung, the lining around her heart, half of her diaphragm, her sixth rib and a few lymph nodes. The cancer has not returned and Dr. Sugarbaker is calling Heather a shining example of the progress he is beginning to see in the fight against a disease that traditionally carried a maximum survival of 12 to 18 months.
"I claim cured," Heather says.
She underwent surgery on Feb. 2, 2006, was in the hospital for 18 days and stayed in Boston for a month. When Heather left Boston, she moved in with her parents for two months. In May, she returned home and began chemotherapy -- every three weeks for 12 weeks. Now, she returns to Boston every four months for a CT scan; so far, so good.
In 2006, Heather filed suit against her father's employers and asbestos manufacturers. The trial was set for September, but was suspended. Heather and her attorney filed an appeal and are waiting for the results. In the meantime, Heather has focused on caring for Lily and maintaining proper health.
"I'm going to be the first meso patient to live 50-plus years. I told my doctor he would retire before I did," Heather said. "And he's OK with that."
To read Heather's full story, click here.
